This is Sophia with a open smile now. He was hopeful he missed the nerve running through there but looks like he may have got it. All we can do is wait and hopefully it will correct. :)
Thursday, January 06, 2011
Alittle nerve damage
This is Sophia with a open smile now. He was hopeful he missed the nerve running through there but looks like he may have got it. All we can do is wait and hopefully it will correct. :)
Tuesday, January 04, 2011
1-31-2011
The date this is going to all go down. We had our last Peri and High Risk Appts yesterday. I had a mental breakdown the night before. Bawled my head off while doing laundry in the basement so no one here knew a thing. I was being tormented by the Devil that this is all going to go badly. To think anything is wrong in there is very VERY difficult. I feel awesome, this is probably the best pregnancy I've ever had. I think partially because this little girl is breech. I don't feel pregnant at all except for this large globe infront of me. I haven't had any bleeding at all for having a complete placenta previa.
I started trying to be "positive" in a screwed up way you could say.
As for me I held together the whole day. It was a LONG day. Our first appointment was at the Peri office for another Sono. She looks to weigh maybe 4 1/2 pounds which is great. Again they looked for about 15 minutes at the placenta. It's an anterior complete previa and they can not tell exactly how much has grown outside creating the Percreta. They see this mass where my bladder is but can't tell how much is really on the bladder. We thought we were doing an MRI yesterday but they told me there was a chance it would throw a negative when I really did have percreta. They give inconclusive results quite frequently so we decided not to add more worry into the situation.
After that long visit we went out to eat and then over to meet my new OB and surgeon. I found out that this will be a vertical incision which scares me as far as pain. They can not cut down there because of the placenta and bleeding factor. We asked as much as we could think of. I asked how often the sono has been wrong and she said never. :( They do about 1 case a month of this condition and usually always ends in a hysterectomy but if not I did agree to a tubal because to go through this again would probably cause my family and husband to all have strokes. It's too late to donate my own blood now and they may give me a transfusion right before surgery so that it helps. I will be awake until the baby comes and then she will tell me what it's looking like in there and if everything is as they believe I will be put to sleep for the hysterectomy. If not they will keep me awake which I'm fairly certain will not happen. I have alot of thoughts with this. I still hate when I think of my first born being asleep when she was born and not seeing her until afterwards. Now in this situation I will see her born but will be put to sleep without knowing if her organs and everything else is ok and that kills me. They basically plan on whisking her away with a NICU team right after birth. Depending how much blood I lose during the hysterectomy part, I'll get blood products then and afterwards. Surgery can be 1-3 hours depending how bad the bleeding is and how long it takes to get it controlled. She also freaked me out saying sometimes they might leave alittle placenta in and that with the hysterectomy they may have to cut some of the cervix or vagina away. Yikes. She says they try not to though.
I guess after the surgery it's just a wait and see what happens. I'm trying not to be too freaked out but January 31st will be here before we all know it. I just want this over with and move on with our 7 little ones. I know alot of people think having the hysterectomy is going to be very upsetting for me but honestly it's not. Dying and not being here for my kids is more upsetting than anything which is what all the crying I've done is about. If I'm not having kids, take all of that junk out. lol!
I started trying to be "positive" in a screwed up way you could say.
- 1. I've never hemorrhaged on any surgery or C-section.
- 2. I do not have a blood clotting disorder which is pretty much a death sentence in this type situation.
- 3. I do well with anesthesia, spinal or general.
- 4. My hemoglobin is usually pretty decent and high which means my blood is in pretty good order.
- 5. I've been taking vitamins religiously and extra iron beefing up my blood.
- 6. I have not been in any pain
- 7. I'm not peeing any blood which is the placenta entering the bladder.
- 8. This was caught early so the surgeons will be prepared going in which means less blood loss or chance of death.
As for me I held together the whole day. It was a LONG day. Our first appointment was at the Peri office for another Sono. She looks to weigh maybe 4 1/2 pounds which is great. Again they looked for about 15 minutes at the placenta. It's an anterior complete previa and they can not tell exactly how much has grown outside creating the Percreta. They see this mass where my bladder is but can't tell how much is really on the bladder. We thought we were doing an MRI yesterday but they told me there was a chance it would throw a negative when I really did have percreta. They give inconclusive results quite frequently so we decided not to add more worry into the situation.
After that long visit we went out to eat and then over to meet my new OB and surgeon. I found out that this will be a vertical incision which scares me as far as pain. They can not cut down there because of the placenta and bleeding factor. We asked as much as we could think of. I asked how often the sono has been wrong and she said never. :( They do about 1 case a month of this condition and usually always ends in a hysterectomy but if not I did agree to a tubal because to go through this again would probably cause my family and husband to all have strokes. It's too late to donate my own blood now and they may give me a transfusion right before surgery so that it helps. I will be awake until the baby comes and then she will tell me what it's looking like in there and if everything is as they believe I will be put to sleep for the hysterectomy. If not they will keep me awake which I'm fairly certain will not happen. I have alot of thoughts with this. I still hate when I think of my first born being asleep when she was born and not seeing her until afterwards. Now in this situation I will see her born but will be put to sleep without knowing if her organs and everything else is ok and that kills me. They basically plan on whisking her away with a NICU team right after birth. Depending how much blood I lose during the hysterectomy part, I'll get blood products then and afterwards. Surgery can be 1-3 hours depending how bad the bleeding is and how long it takes to get it controlled. She also freaked me out saying sometimes they might leave alittle placenta in and that with the hysterectomy they may have to cut some of the cervix or vagina away. Yikes. She says they try not to though.
I guess after the surgery it's just a wait and see what happens. I'm trying not to be too freaked out but January 31st will be here before we all know it. I just want this over with and move on with our 7 little ones. I know alot of people think having the hysterectomy is going to be very upsetting for me but honestly it's not. Dying and not being here for my kids is more upsetting than anything which is what all the crying I've done is about. If I'm not having kids, take all of that junk out. lol!
No Answers Yet
This is Sophia on the way to the ENT Dr this morning for a follow up after surgery. Not happy at all. We had a 10 minute fight of putting on clothes and shoes this morning and then another fight to buckle her in. She knew exactly that whatever we were doing involved her face because no one was going with us and was staying home with Grandma. 
Today's appointment we were hoping to get more answers but we didn't get anything. So far all the cultures have came out negative. We are waiting on Cat Scratch Disease. A nurse and I held her down as he removed the plastic drain from her face. Then he stuck 2 swabs in the hole from the drain to get new cultures and then called a Pediatric Infectious Disease Dr to see if we should send her there for more care. The Dr at that practice in Wichita said he thinks that what her ENT Dr is doing now is about the same as he would do so to keep her here until we can figure this all out. If it is Mycobaterium then we just wait it out and she will continue to take Baixin for 3 months. He said he's not sure if the other side that is swollen will ever do what happened to the other or maybe the meds will get rid of it. We go back in another week to have stitches removed. Since there was still some infection he was afraid to take them out and the infection to open up the stitches. Will be so glad when this ends which right now feels like never. lol
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