Tuesday, March 15, 2011

Sophia's NEXT surgery

So depressing that we are going to have to do this again. April 1st we will be at the surgery center again with Sophia. Her last surgery was December 27th. I know her ENT did not think we'd even have to go this road. He said he cleaned the infection out and took all the lymph nodes out, she was even on Biaxin just like she had been the whole time this was going on and 3 weeks after surgery I discovered her cheek was pinking up just like her chin did the first time. This picture was taken the morning we were going to the Infectious Disease Pediatrian.

It would be nice to find other parents who have dealt with Mycobactrium Tuberculosis however this stupid disease is so rare there are not many parents out there. Her ID Ped told us he had 6 kids in the past year and that's ALOT, it comes in spurts and so somehow it's coming back. It's not contagious at all but is very difficult to get rid of. The bacteria is in the Tuberculosis class, you'd have to google it but the only thing it really has to do with Tuberculosis is it affects primarily the lymph nodes in the neck area. Our option was probably a whole year of pain, 2 antibiotics, her face eventually breaking open and draining, and then healing or surgery cleaning out the dead lymph node and making her better quickly, still taking the meds but only 3 months. Hopefully he will be able to fix her scar again as the 2nd infection ate away at his work and now it's very red and didn't heal nicely at all.

I am so ready for this to be over with. I pray this is it. I can't imagine it sticking around and praying on another lymph node in our poor little Sophia's body. This is definitely one of those things I wish I didn't have experience in. lol

7 comments:

kbreints said...

Oh my goodness! I am so sorry that your baby has to go through this, but i am sure with as good a mom as you are she is well taken care of! I cannot believe how big she has gotten! Man time flies.

Rebecca said...

One of my dear friends has dealt with this with her daughter. I've directed her to your blog, maybe she can contact you! So sorry you are going through so much with your sweet girl!!

The Tolers said...

Sorry you are going through this. Our almost two year old (at the time) had this last year and had two surgeries also. This morning I woke up to find another swollen lymph node on the other side of her neck. All I could do was cry. We few parents need to form a support group to compare treatment.

Cindy said...

I don't even know what to say, my heart breaks for you and for her. Lots of prayers that this is the end of it :-(

Cindy said...

just checking up on you to see how the surgery w.ent

Cindy said...

UPdate?

Cindy said...

just checking on an update!